Monday, December 24, 2012

Sleepless in Hammersmith

Day 15
 
General status update
Hair: Seems to be falling out less than usual, if anything. Am beginning to wonder if the follicles are still in shock from the chemo; perhaps when they finally wake up, the whole lot will just all fall out at once. This is pretty much what happened to one of my virtual ‘Starting Chemo in December’ Buddies, who started a week before me – she was devastated. She didn’t do the cold cap, though.
Nausea demon: Still doing his stuff – If I slip up and leave too long between doses of the anti-emetic drugs, he’s like a cat waiting to pounce.
Chemo Muse: she defeated sleep almost entirely for 2 weeks, but now sleep is starting to fight back.
Sleep, lack of: Now chronically sleep-deprived, and not functioning very well, after several nights of going to bed at 3 or 4 am – this is going to be remedied tonight by a dose of Lorazepam, Morpheus’s chosen pharmaceutical. Unfortunately, this will mean a very groggy Christmas Day, but it can’t be helped: I MUST get some sleep.
Anxiety level (1-10): too tired to be anxious, but if I weren’t I’d be very anxious about being so tired.
State of mind: I just want to lie down in my Hobbit-hole and go to sleep for a very, very long time.

 
Since I started this blog on the day before my first dose of chemo two weeks ago, I have published a post every day, and written some 15,000 words, including this post, which is half as long again as my MSc dissertation; at this rate, by the time I finish chemo the total word count will approximate that of a D.Phil thesis.  The blog has now had about 4,500 hits, and has readers in the USA, Canada, Australia, New Zealand, Turkey, Spain, France, Ireland, Belgium, Germany, the Netherlands, India, South Africa and the Cayman Islands, as well as the UK.
 
 It’s been a busy couple of weeks, no?

There is no such a thing as a free lunch, and the downside of the manic mental energy I have been experiencing over the last 2 weeks is an inability to sleep; after many wakeful nights I am so exhausted that it is quite hard right at this minute to focus my mind long enough to write coherent sentences.  Today has been a sofa day, pretty much, but I have been too tired even to read. So a proper blog post is not really on the cards and besides, I have been ordered by the powers that be to get some rest before I collapse completely.

I have 7 days left before I go back to the hospital for the next dose of the chemo - or FEC 2, as it's known in the trade - and then they'll be giving me more steroids, and the whole thing hyperactivity will start all over again. I MUST get some rest, slow down and become more functional before we have to start the chemo cycle all over again.
 
So in a minute I’m going to go and lie down, but I’ll leave you with a interesting historical artefact from the Fo photographic archive:
 
 
This one was not posed by a model; the girl on the left is - or was, once upon a time - actually me.
 

It's hard now to believe that I was ever that young...
 
We made it to the quarter finals of University Challenge and yes, Bamber Gascoigne was delightful.

Sunday, December 23, 2012

Don't worry about a thing, 'cause every little thing gonna be all right...

Day 14

General status update

Hair: cowering, frightened, waiting for the axe to fall – but still attached.
 
Nausea demon: giving me the occasional poke in the stomach with his pitchfork, just for fun, but otherwise much concerned with the preparatory reading for his OU course – he settled on the Diploma in Counselling, in the end. I put it to him that surely tormenting was rather more in his line, and he blushed and muttered something about broadening his skills portfolio, which has a certain economic logic to it: he can start tormenting people first, and then charge them a fortune for advice on how to cope with it.
 
Chemo Muse: continues to be completely manic – am beginning to wonder whether she might be a Bacchante in disguise.
 
Sleep, lack of: so, so tired – tired but wired, a bizarre combination.

Fingertips: still a bit numb – am worried this may become permanent. It’s called peripheral neuropathy, apparently.
Toes still seem ok, though.

Heightened sense of smell: it’s like having a hearing aid in my nose, and not in a good way.

Anxiety level (1-10): can’t slow down long enough to be anxious, frankly.

State of mind: much improved after going to see the Hobbit this afternoon, my first proper outing since Day 1 of chemo. Ignore the critics, it is entirely wonderful: there is husky-sledding, only with rabbits, a very moving hedgehog resuscitation scene, and I cried at the end. What more could you possibly want from a movie?

 
 
(picture posed by a model, in 1910; these are NOT my actual breasts)
                                                                   

I always got on very well with my breasts, until the day I began to suspect that one of them might be planning to kill me. 

We had co-existed harmoniously ever since they first appeared, and they had never given me a moment’s trouble; it never occurred to me that this state of affairs might ever change. My breasts have never had to work for a living: I don’t have any children, so they have not been troubled by the exigencies of breastfeeding, and have until now led a fairly cosseted existence - I do like a pretty bra. They are a good size, a nice shape, and have functioned primarily as a source of pleasure.
 
From the moment I found the lump in my right breast, however, whilst soaping off the chlorine in the shower after a swim in the pool at the Charing Cross Hospital Sports Club, my attitude towards my breasts changed, radically. We became somewhat estranged, once I began to suspect that one of them was harbouring something potentially lethal - It felt as if I were walking around with a hand grenade strapped to my chest wall.

A video still plays constantly in my mind of that life-changing moment, three months ago now:

My fingers moving across the soapy upper slope of my right breast, the sudden awareness of something hard beneath the skin, that felt like…. a lump. Surely not? I’m not a lumpy person.

My fingertips running over my breast again, feeling the resistance under the skin. The undeniable presence of a small, but clearly discernible, lump.

 My fingers pushing it and prodding it, again and again. It wasn’t tender, it didn’t hurt, it was just there, the size of a Marks & Spencer wasabi pea, perhaps, exuding  lumpiness, having apparently sneaked in and taken up residence in my breast whilst my attention was elsewhere.

My first, insane, thought that the lump was muscle I had developed by swimming so many miles in the pool...

Yes, the process of denial began right there, and would continue for some time. I wasn’t unduly worried, or at least told myself that I wasn’t, knowing that in middle age women’s breasts tend to become more lumpy, and that 90% of those lumps are benign; that most breast lumps are harmless, fluid-filled cysts, or inert bits of fibrous matter. A friend had recently told me about how, whilst working in a remote part of Nepal, she was forced to fly back to London to have a breast lump investigated. It proved to be innocent, and she took the opportunity to stock up on marmalade and Marmite, before flying back to Kathmandu. She had found several other lumps over the years; all had proved to be benign.

Another friend, a legendary swooner in medical environments, often at other people’s hospital bedsides, had told me how she lost consciousness with her breast clamped tight in the mammogram machine:

 It’s not much fun passing out with your left tit squashed inside a giant sandwich toaster’.

Her lump was ‘Just gristle, nothing nasty’.  Another false alarm.

Of course, I knew of people who had had breast cancer, but no one closer than two degrees of separation. It had recently struck me as odd that in spite of the fact that I was always reading about the disease in the media, I didn’t personally know anyone who had suffered from it. Given that 1 in 8 women in the UK will contract breast cancer at some point in their life span, usually at the latter end, it was inevitable that one day someone in my circle of family and friends would get it.

I had been confident, however, that that person wasn’t going to be me. For a start, I come from a long line of vigorous Fo women who have lived to their late eighties or early nineties, completely compos mentis and in good physical shape, without chronic diseases; I remember my maternal grandmother redecorating her own bathroom in her early eighties. None of them had died of breast cancer.

 In a lifetime of competitive hypochondria combined with general good health - Big Sis Fo and I have spent many happy hours over the years googling and discussing our various symptoms - breast cancer just wasn’t one of the diseases I had chosen to major in; it hadn’t even made the short list. I was pretty sure I had some kind of rare auto-immune disorder, not amenable to simple testing, and quite possibly the beginnings of a degenerative neurological wasting disease, but breast cancer wasn’t even on the agenda.

 Still, the lump didn’t go away, and you need to check these things out, so I made an appointment with the doctor. He took my history, examined me, found the lump, and told me that there was almost certainly nothing to worry about, whilst simultaneously writing out an urgent referral note to the Breast Clinic at the Charing Cross Hospital, which the receptionist faxed to them immediately. They would see me within 2 weeks, he said, and that is exactly what they did.
 


 

Saturday, December 22, 2012

Of all the timelines in all the Twitterverse, he walks into mine…

Day 13: Intermezzo - a brief romantic interlude.

General status update:
Hair: no change
Nausea Demon: Quiet, as he’s busy finalising his choice of Open University course – he’s narrowed it down to either a Diploma in Counselling or a course in ‘Health and Social Care’.  Go figure.
Chemo Muse: channelling her Inner Whirling Dervish. It’s frightening.
Heightened sense of smell: red wine, one of my favourite things in the world, now smells like vinegar. I no longer have any desire to drink it. This makes me want to weep.
Skin: Getting very dry, and a bit sore. By the time the sixth dose of chemo comes around, I will have completed my metamorphosis  into a Komodo Dragon Giant Lizard. Eat your heart out, Franz Kafka.
Anxiety (0-10): Yea, though I walk through the valley of the shadow of death, I will fear no evil - and that is all down to Lorazepam, the Lord’s Own high-potency, 3-hydroxy benzodiazepine drug.
State of mind: On standby. Please don't pull the plug out from the wall.
 

 Once upon a time or, more precisely, one bright summer’s morning in July 2010, a woman called Betty was finding ways not to do the thing that she knew she ought to be doing, which was writing. Betty (who lived by the English seaside in a town called Whitstable, famous for oysters)


had a contract with a publisher, and an overdue deadline, and she needed to concentrate on finishing the chapter she was writing, in the worst possible way. So, not unsurprisingly, she was playing Spider Solitaire and letting herself be distracted by Twitter.

At exactly the same moment two other people, one in a recently restored old camel barn on the north Aegean coast of Turkey....




 the other in an office in a university in London,


 were doing much the same thing: namely, anything at all to avoid applying themselves to the task before them that urgently needed doing. 

At 11.43 am Betty realised how much of the morning she had wasted, and observed sadly to the Twitterverse:

@52Betty Procrastination is the thief of time, and he has STOLEN my entire morning.

 Her two fellow procrastinators - both acquainted with Betty, but not with each other - smiled with fellow feeling when, simultaneously, 2000 miles apart, they read her words; they both then replied to her, as follows:

@carolinefo You said it, @52betty. I just looked away for a moment, and he snatched the morning away right from under my nose.

@richardethics The little bugger’s been round here and pinched most of mine, too, @52betty.

Back in Whitstable Betty laughed, and tweeted again:

@52Betty Do you think the 3 of us should start the Official Twitter Procrastinators Club, @carolinefo and @richardethics?

And that was the moment, the precise instant, when R and I appeared on each other’s timelines, and became aware of each other’s existence for the first time. We owe it all to Twitter and to @52Betty, long may she thrive and prosper.

Whenever anyone asks me how R and I met, I never hesitate, stumble, blush or dissemble; I never look shifty and evasive, or mutter something vague about how we were introduced by a mutual friend.

No, I say it loud and sing it proud:

We met on Twitter, actually – during a discussion about procrastination.’

 
 
nb The @richardethics Twitter account is no longer extant; R tweets now with a different Twitter name.
 

Friday, December 21, 2012

Whatever Gets You Thru the Night…

 Day 12 - The Chemo Muse Moves In




 
General status update

Hair: still there, but it usually starts to fall out between days 9-14 of the first chemo cycle, and I am now on day 11, so both Hair and I increasingly anxious. No sign yet, however, of the painful scalp-tingling which apparently signals imminent hair loss.
 
Nausea demon: fighting back a bit today, as I got overconfident and careless and went for too long between doses of the meds – he was in like Flynn.

Chemo Muse: has unpacked, done the ironing, written a Petrarchan sonnet, and is about to go for a run.

Anxiety level (1-10): took Lorazepam last night to ensure some sleep; this makes you the opposite of anxious. Whatever that is. Unanxious, I expect.

State of mind: liquid jelly, pomegranate flavour. It’s the drugs, dude.

 
Yesterday I got up at 5.30 a.m., my mind buzzing with ideas, and worked at my computer through the whole day - with only short breaks for refreshment and the ingestion of various pharmaceuticals – until about 9 p.m., writing, editing and publishing yesterday’s lengthy, scent of decomposing rat-infused blog post, some 2,200 words in length.

Given that I have cancer, and am in the middle of my first chemotherapy cycle with its attendant unpleasantnesses, this Stakhanovite work rate is taking a lot of people by surprise, not least myself, and gives rise to the question of where the hell all this insane (and entirely uncharacteristic) mental energy is coming from; as Big Sis Fo put it with her customary directness when she called me earlier today for a chat: ‘Caroline, WHAT THE HOLY F*** ARE YOU ON?’

By the way, my sister mentioned in passing that the MC was in the kitchen experimenting with beetroot macaroons (yes, you read that correctly) for possible inclusion in his pre-lunch canapé selection on Christmas Day. They are to be served with smoked salmon and horseradish sauce, apparently. I will try to keep you updated with any further exciting canapé innovation news from north Yorkshire as it happens.

My sister asked this not just because I am writing so much, but because she has heard me talking for the last few days in what my OH has tactfully called an ‘effervescent’ manner – I know that I am speaking about twice as fast as I normally do, with great urgency, and a certain amount of hilarity. The general consensus of the entire Fo family is that I appear to be hopped up to the gills on amphetamines – but I’m not, I’m really not.

They give you steroids for the first three days of chemo, but I stopped taking them over a week ago, so it’s definitely not the Dexamethasone. So that brings up the question of all the other meds I’m now on, and to one very strange facet of being treated for cancer. At this stage, I’ve almost forgotten about the cancer: my on-going battle, for the next 17 weeks, is with the chemotherapy drugs, and their side effects, and the side effects of the drugs they give you to counter the side effects of the chemo, and so on ad infinitum.

Last week, before having chemotherapy treatment for the first time, I was feeling perfectly well: the cancer had been cut out of me, I’d had a few weeks to recover physically and mentally from the operation, and I’d even been able to go swimming a couple of times. I was sleeping through the night again (inability to sleep is very common in the first couple of months after a cancer diagnosis), and feeling just about as well as you could do, in the circumstances. I was as ready, mentally and physically, for chemo as I would ever be.

A week later, and I had become a tormented lab rat, in a state of extreme physical discomfort and agitation, running round and round inside my cage in a frenzy of distress. Hand in hand with the unrelenting, overwhelming and debilitating nausea came a feeling of constant agitation, mental hyperactivity and general SPEEDINESS, and unless I take a sedative, I just cannot seem to slow down.

There is a voice in my head, constantly, a narrative voice which seems quite independent of me, somehow, observing what I’m going through, commenting on it and then demanding that I write it all down. Now. This voice simply WILL NOT SHUT UP, except with the help of Lorazepam, and then as soon as I wake up again it continues as if it had never been silenced.

 I mentioned this bizarre phenomenon to a friend, who said not to worry, all inspiration is good, but added thoughtfully that should, by any chance, the voice start telling me to do anything other than writing, say, to give a random and entirely hypothetical example,  should it urge me to go after my loved ones with a carving knife, it might be wise to seek medical help immediately, might it not?

I assured her that if such an eventuality arose, I would do exactly that.

So, in addition to the Nausea Demon, I seem to have acquired a new long-term guest, the Chemo Muse. 

There are now 3 of us in this relationship, and we’re all going to have find some way of co-existing for the next 90 days, as neither of them is showing any inclination to make their visit a brief one. I had anticipated drowsing my way through chemo and its attendant crippling fatigue with lots of sofa time, napping, reading and watching boxed sets of The Killing, but that is quite evidently NOT going to happen.

The Nausea Demon is now more or less under control as long as I remember to take my meds on time, but the Chemo Muse is under no such restraint; as soon as I wake up, she wants to talk. She’s all excited, happy, impatient, pouring into my head a constant stream of ideas for blog posts, and snappy titles, and suggesting issues around cancer and its treatment which it might be useful to discuss.

The Chemo Muse won’t shut up, and she keeps nagging at me to make a written note of what she’s saying, IMMEDIATELY, lest I forget a single detail. The other day, walking down the road on the way to the Brook Green Tesco, I found myself stopping and scribbling down several pages of notes, my notebook perched on top of a handily sized stone gatepost. The Chemo Muse is like a Twitter feed running constantly through my head – and indeed, some of what she says goes straight down on to my own Twitter feed.

I don’t know what is causing this, but I have to embrace it: it’s a hell of a lot better than lying on the sofa for the next 90 days thinking about the nausea, listening to my hair fall out, and sobbing over The Pity of It All, but it’s really quite wearing. While I’m awake, there is no down-time: the Nausea Demon down in my stomach, and the Chemo Muse up in my head, are at it, hammer and tongs, through the hours of wakefulness, which are long, as I wake at 5am, my brain bursting with ideas; thank God they’ve given me the Lorazepam, which needs to be used with caution but does ensure that in extremis I can shut up the Chemo Muse and get some sleep by the simple expedient of knocking myself out.

The Chemo Muse isn’t like me, my normal self: she’s hyperactive, on the go from morning till night, full of energy, always looking for the next thing to do. The Chemo Muse is not interested in sofas, or having a little nap and no, she doesn’t want to sit down with a nice mug of tea and a digestive and read the paper for a bit. She wants to GET ON and DO STUFF, especially writing about the experience of chemo.

I have a good friend back in Turkey, an American friend, T, who is the living embodiment of the phrase ‘a ball of energy’. I have always been impressed by, and in awe of, her phenomenal energy levels, constant purposeful activity, and the amount she achieves every day – and could only think that there must be a genetic reason for this, that her body must have a much speedier basic metabolic setting than mine. T leads life at a pace I could only begin to imagine – at least until the Chemo Muse moved in last week. Now, for the first time, I have some sense of what it is to be my friend T.

I’m enjoying it, and going along for the ride, as long as it lasts - once the Fatigue Demon arrives, as he surely will, he may have the power to shut down the Chemo Muse altogether.
 
Nor am I enquiring too closely into whether the appearance of Chemo Muse IS simply a pharmaceutical artefact or whether, as another friend suggested, she might be a coping mechanism, a way of my brain helping me to bear the horror of what has happened to my life in the last few months, and the knowledge of what the chemo is now doing to me, and will continue to do, only more so, over the next 90 days.

Explanation, I’ve decided, and precise delineation of cause and effect, are not really important here: the Chemo Muse has come as a completely unexpected, but very useful guest, and she is welcome to stay for the duration. And let’s just file her, as suggested by John Lennon, under the category of ‘Whatever gets you thru the night…

 

Thursday, December 20, 2012

The North Yorkshire Rat Apocalypse

Day 11

General Status Update

Hair: no change and, because I’m afraid to brush it, looking pretty ratty.
Nausea Demon: Increasingly cross. Claims the powerful and disabling cocktail of anti-nausea drugs he is now being administered every day is breaching his Inhuman Rights. Threatening to take me to an employment tribunal.
Heightened sense of smell: should you come within 10 yards of me on the street eating KFC or a kebab, I WILL KILL YOU.
Anxiety level (1-10): but enough about me – how anxious are YOU now feeling, after reading all this? I bet you’re checking yourself for strange lumps on a much more regular basis now, aren’t you?
State of mind: best observed through a glass, darkly.

 
The first I knew of the North Yorkshire Rat Apocalypse was a few weeks ago, on one of the coldest, darkest and stormiest nights of the year, the night 2 months’ worth of rain fell on the north of England during the space of a few hours.

 The phone rang, and on the other end was Big Sis Fo, babbling:

‘They’re outside, they’re outside’ she cried ‘they’re BANGING ON THE WALLS, and they’re TRYING TO GET INSIDE THE HOUSE!’

 After pausing for an instant to draw breath, she continued:

 ‘And the internet has gone off and it’s been raining non-stop for 24 hours and the beck is going to overflow any minute and then we’ll be flooded and then we’ll never be able to sell this house again NEVER NEVER NEVER, and we will have to live here FOREVER!’ 

‘But I thought you loved the house so much that you never want to move again, and intend to be carried out of there in a box, feet first?’

‘That, Caroline’ replied my sister, a touch tersely, ‘is BESIDE THE FUCKING POINT’.

 I made soothing noises, and suggested that she pour herself a Weapons Grade gin and tonic, for medicinal purposes, and tell me exactly what was going on.

At this point I should give you a little background info on Big Sis Fo, the oldest of the Fo Sisters - there are five of us in all, including my two lovely step-sisters (who are not genetically Fos and therefore much saner, generally nicer and incomparably better-mannered than the rest of us). We are like the Bennet sisters, only middle-aged and with iPhones. And without the lovely frocks. I like to think of myself as Elizabeth (delusional, much?) and my younger sister, aka L’il Sis Fo, to whom you have yet to be introduced, is Lydia. Very Definitely Lydia.
 
Big Sis Fo is thus, obviously, Jane.

Like Jane Bennet, Big Sis Fo found a Happy Ending with her true love (only in her case, second time round), and they live together, with a truly demented Hungarian Visla called Hank (think Scooby Doo on crystal meth), in an exquisitely restored 18th century farmhouse (pure property porn, it’s even been featured in one of THOSE magazines), with a stream (in local parlance ‘beck’) running through the grounds, in a small hamlet on the north Yorkshire plain, on the edge of the Howardian Hills (the geological significance of this location will become apparent later). 
 
 
By the way, as always with stories of Fo family members, please be assured that I am not making anything up (a friend suggested me to me recently that the Fo family motto should be ‘Ultra parodiam’ i.e. ‘Beyond parody’, and I think he may well be right).

So, Big Sis Fo lives a truly enviable life in her rural idyll with a man who

a) is utterly devoted to her,

b) is 13 years younger than her,

c) earns a quite ridiculous amount of money as a partner in one of the big management consulting firms (so let’s call him the MC from now, for ease of reference),

d) not only insists on doing all the cooking, but does so to pretty much restaurant quality standards (his pink grapefruit granita is to die for),

e) has converted the stables into a wine cellar to house his ever-growing collection of rare and precious vintages, including a world class selection of vintage champagne, and finally – 

and this is the one which is going to make women everywhere want to HUNT DOWN AND KILL my sister 

f) insists on doing absolutely everything related to Christmas.
 
I will repeat that, the MC does Christmas. Every single bit of it.
 
Christmas is his hobby, for goodness sake; he takes two weeks leave every year in December to devote himself to the whole enterprise, from presents to decorations (I’ll leave you to imagine the Christmas tree) to the seven course Christmas lunch extravaganza, accompanied by the kinds of wines that the likes of you or me are highly unlikely to get to drink in this lifetime (unless we happen to be related to him, that is, which happily I am).

You’re beginning to hate Big Sis Fo now, aren’t you? I don’t blame you – it’s almost impossible not to. The rest of it you could just about take, but the Christmas thing is the absolute killer. I keep thinking she must have done something amazingly wonderful, in karmic terms, in a previous life, to deserve the one she has now. Maybe she was Mahatma Gandhi, or Mother Teresa. She’s very fond of curry, come to think of it – but no matter, you’re going to start feeling a whole lot more sympathetic towards her when we get to the full horror of the Rat Apocalypse, which will be very, very soon.

Rats apart, the only other less than optimal feature of my sister’s fabulous existence is that the MC, who likes to go shooting and salmon-fishing when off-duty, has landed her with the daily care and maintenance of his dog Hank, a Hungarian hunting dog with major behavioural problems, despite having being sent away for training at the gun dog equivalent of Eton. Although, to be fair, his education was cut short, rather abruptly, after he urinated all over the dog trainer’s feet, in an attempt to assert his dominance, something which no other trainee gun dog had ever had the balls to do. Hank’s balls, by the way, are enormous, and the fact that they are still attached to him is a continuing bone of contention between Big Sis Fo and her partner… but I digress. We will return to Hank and his humongous balls another day.
 
 
Where was I? The night of the storm, and my sister on the phone, swigging back almost neat Bombay Sapphire on ice to calm herself as she began to tell me how she and the MC had, a few days previously, become aware that they might have a problem with vermin.

 When you live in a big house, especially a very old and very cold one in the bracing climate of north Yorkshire, you inevitably end up spending most of your time in one or two favourite rooms; such is the case with Big Sis Fo and the MC who, of an evening, are usually to be found in a tiny little room off the kitchen known, inevitably, as ‘The Snug’; this little den has barely enough room to hold a small sofa, an armchair and the 42” plasma TV the MC had installed above the fireplace, the better to watch the Cooking Channel non-stop from a horizontal position when he is not out at work, or otherwise engaged.

One evening a few weeks ago Big Sis Fo, the MC and Hank were all sitting in front of the fire, watching Yotam Ottolenghi disassemble a large squid, when they became aware of noises coming from – underneath them. Hank immediately began to run round in circles, quite difficult for a dog his size in a room that small, barking his head off. The MC muted Yotam for a moment, and they all continued to listen. Yes, something – or rather a number of somethings – was moving around under the floorboards. Stomping in fact. Quite loudly. It was evident that there was a party going on down below to which the official occupants of the house had definitely not been invited.

‘OMG’ said my sister ‘we’ve got mice. I’d better get some traps’

‘I dunno,’ said the MC ‘it sounds a bit loud for mice. Maybe it’s badgers.’

‘I don’t think they sell badger traps,’ replied Big Sis Fo ‘and aren’t they protected? If it’s badgers, they won’t let us touch them. It’s like bats. Hell’s teeth, we may end up being forced to run a badger sanctuary.’

The next day my sister put down mouse traps. The noises from below continued, however, and grew louder, as the new occupants started asking their friends to drop by; by the end of the week they decided that there nothing else for it but to call in the council Pest Control man.

When the Pest Control man walked into the snug, he just sniffed the air and said ‘’Ey up*, love, you’ve got rats. I can smell ’em’. Big Sis Fo was mortified to hear that her house stank of rats, but the Pest Control man hastened to assure her that in his line of work he had developed a heightened sensitivity to the very faintest traces of rat odour, quite undetectable by the average person.

After examining the exterior of the house, the Pest Control man found the hole where the rats had tunnelled through the base of the wall under the bay window in the snug. He laid poisoned bait in various places around the exterior of the house, assuring Big Sis Fo that, once poisoned, the rats would head out from under the house to seek water, as poison makes them very thirsty. As my sister stood at the open door waving him off, she heard a noise and looked down. A large black rat was sitting just in front of the doorstep, looking up at her, as if waiting for admittance.
 
 
(picture posed by model - that is not the actual rat). .
The wall through which the rats had tunnelled inside was repointed; within a few days they had eaten their way through the new mortar, and were back inside, continuing to party. The new breed of Giant Mutant Ninja Rats - and these ones are particularly hard, coming from Yorkshire - just love mortar with a side of rat poison. And the reason they were continuing to invade the house, as on the night of the storm, when my sister could hear them scrabbling around just outside, banging on the wall, trying to get in, was - the weather.

The massive rainfall experienced this year has meant that the Yorkshire plain is SODDEN; black rats have a particular aversion to getting their feet wet, so have been coming out of the fields and hedges looking for warm, dry places of refuge. North Yorkshire and, for all I know, the rest of the country, is genuinely facing a plague of black rats, a lot of whom found their way chez Big Sis Fo.

In the end, the ONE THING that prevented any more rats getting in was, strangely, Brillo Pads. Rats will eat anything, up to and including actual walls, but they won’t eat Brillo Pads. The texture and taste of wire wool covered in caustic detergent doesn’t agree with them, apparently. Please note this useful tip for future reference in case the Rat Apocalypse moves into your neighbourhood next.

So, things were looking up: the rats had either been poisoned, or couldn’t get inside any more, and gradually the noises underfoot stopped. Problem solved.

A few days later, the smell started.

My sister, when asked to describe what the corpse of a dead rat decomposing under your floorboards smells like, was both clear and concise:

It smells like liquid death – SWEET liquid death. It is unspeakably vile and even just thinking about it makes me want to vomit.

So the carpenter came, to take up the floorboards in the snug, now rendered uninhabitable by the awful, terrible-beyond-imagining smell that was wafting up from below; the Brillo pads, of course, had not only prevented more rats from getting in - they also stopped the poisoned rats from getting out. Underneath the floorboards they found the decomposing corpse of one recently deceased rat, and one mummified rat; problem solved.

But a few days later the smell reappeared, first in the dining room and then, bafflingly, in the snug. And so it went on. By the end of last week all the floorboards in the entire ground floor of the house had been taken up, and a total of 4 fresh rat corpses, and 3 mummified ones, removed. The carpenter insists that there are no longer any decomposing corpses in situ, but my sister swears he is wrong – she thinks there is at least one left, somewhere inside the old, thick stone walls, which cannot be got at. 

‘I know the smell of dead rat by now’ she said, darkly ‘I’ve lived with it long enough, and there’s still at least one there. I KNOW THERE IS.’ 

Christmas is coming, the highlight of the MC’s year, and there will be a number of guests around the dining room table for his command performance. All Big Sis Fo can do is hope that the smell will finally have dissipated by next week – but she isn’t holding her breath. Although she will be on Christmas Day, quite possibly.

She’s asked me to give her a flame thrower for Christmas.

So that, my friends, is the true story of the North Yorkshire Rat Apocalypse.

On the whole, I’d prefer to have the chemo.

 

*People do actually still use this expression in Yorkshire dialect, it is not a comic myth - it comes from Old Norse. I have heard it myself.

Wednesday, December 19, 2012

Coming Attraction: The Rat Apocalypse


Day 10

General status update:
 
Hair: still attached, but it’s starting to look a bit worried.
Nausea Demon:Confined to his room until the next dose of Chemo on Jan 2nd, and very unhappy about that; he is thinking about signing up for an OU distance learning course to use his down time productively.
Enhanced sense of smell: It has been suggested to me that I should take advantage of this new super-power, and hire myself out as a truffle hunter. I may go and test this out amongst the trees at Kew.Must be some truffles there.
Anxiety level (1-10): I just looove sedatives.Why don’t they just sedate you for the whole 100days? It would be so much easier on everyone.
State of mind:  Fragmented. Of which more later.

 
The first week of my first chemo cycle has been one of exhausting, distressing  and unremitting horribleness, as those of you who are by now regular readers will already know; you might expect to find me today, then, lying on the sofa, having a little weep and feeling very, very sorry for myself.

Wrong.

I have absolutely no time available to lie around feeling sorry for myself, because I am far too busy feeling sorry for my older sister, aka BigSisFo, who, whilst I have been trudging wearily through the foothills of the Chemo Mountain, has been experiencing something far, far worse:

The North Yorkshire Rat Apocalypse. 

The story of the North Yorkshire Rat Apocalypse is one so horrifying, so terrifying, so gut-wrenching in every visceral sense of that expression, that I must do it justice; it would be to diminish BigSisFo's very real suffering were I not to transmit to you the story in properly detailed fashion and that cannot, sadly, be accomplished by the end of today.

This post is, therefore, by way of a trailer for tomorrow’s big attraction: 
 

The North Yorkshire Rat Apocalypse

‘A spooky old house – a cold dark night – the storm of the century, with the river about to flood  - a woman alone, but for her faithful though demented crack-crazed hound – and an ARMY of GIANT BLACK RATS, seeking shelter from the storm.’
 

 This is a story guaranteed to make you feel better about your own circumstances, however wretched they may be  - be sure to log on about this time tomorrow night…

 

 

 

Tuesday, December 18, 2012

If you believed they put a man on the moon, man on the moon…



  
Day 9

General status update
Hair: no change
Nausea Demon: confined to his room, and sulking. Playing loud rap music to make his feelings clear
Sense of smell (NEW!): magnified by about 300x. I can smell cooking smells from 200 yards away, and they TURN MY STOMACH. I am turning into a dog. A dog with nausea.
Anxiety level (1-10): They’ve sedated me, dude. And I love them for that.
State of mind: None, currently
 
 
So I’m on the phone first thing Monday morning to Sister Chemo at the Chemo Day Unit (Monday-Friday, 9.00 am -5.00pm)  - the so-called Chemo 24/7 Emergency Help Line, as you will remember, having been mysteriously unavailable over the weekend  - 
requesting urgent assistance, given my continuing acute gastric distress, and the fact that my supply of anti-emetic drugs, which should have lasted for a couple of weeks, is about to run out.

Sister Chemo is very nice, but it is quite clear that she will not be providing any active assistance to alleviate my distress; this kind of thing, it seems, is Not Her Problem.

 ‘Oh, your GP will give you something for now,’ she says, ‘and then when you come for the oncology clinic appointment in 2 weeks’ time, before your next dose of chemo, you can talk to the consultant and get it sorted out, if it’s still a problem.’

She then adds, in a confidential tone: ‘I tell you what, though, you should ask your consultant for a drug called Fosapprepitant for your next chemo cycle – it’s MARVELLOUS.’
 
‘I’ve already had that’ I reply, perhaps a little sourly. 

‘Oh dear’ says Sister Chemo ‘OH DEAR’.

So I call my GP’s surgery, tell the receptionist I am a chemotherapy patient with severe nausea problems who cannot come into the surgery right now because of the infection risk, and request a telephone consultation with the doctor as soon as possible.

She sighs.

‘We’re very, very busy right now’, she says ‘So he can’t talk to you today, but I can fit you in for a telephone consultation between 5.30 and 6.30pm tomorrow evening’. So that would be another 36 hours of unrelenting nausea without any help. I had been told that I should DEMAND to speak to the doctor if necessary, and that they are obligated to let me, but I’m too weak and upset to argue at this point, and I don’t want to break down and start weeping uncontrollably on the phone. Or begging.
 
So much for the urgent and immediate response to the needs of chemo patients – it hasn’t been a great start. By now I have tried all the prescribed official channels and got Absolutely Bloody Nowhere. So it’s time to try something else. I have one last telephone number I can try – at my last oncology appointment before chemo I had discussed with Stan the whole ‘How do I get help if things get bad between hospital appointments?’ issue, and he had given me the Chemo 24 hr. Emergency Helpline number, and reassured me that it was manned AT ALL TIMES, and that I would never be more than a quick phone call away from help.
 
 As an afterthought, however, he then gave me the number of the oncology consultants’ secretary ‘just in case’, saying that if all else failed I could give her a call, she would relay the message to him, and he would send a scrip down to the hospital pharmacy to issue me whatever meds I required. This would only work on a week day, obviously.
 
Calling this number is what I now think of as the Chemo Joker – it saved me.
 
I called the number, began talking, and then burst into tears. Through the sobs and the hiccups, while she made soothing noises and tried to calm me down, I explained to the oncology secretary - a truly wonderful woman called Dina whom I now love very much - the extent and duration of my nausea predicament, its on-going status, and the fact that not only did I need to add some new, different meds, but that the ones I already had were going to run out by the following morning.

‘I’m putting this into an email’ she said ‘and I’m sending it to Stan immediately. Give me the number he can call you back on. HE WILL CALL YOU, I promise.’

Stan called back within ten minutes.

Finally, the cavalry had arrived.

He quickly assessed the gravity of the situation, including my by this point very precarious mental state (the mantra ‘Goa, Goa, Goa, run away to Goa’ was now repeating itself in an endless loop in my brain), and said he would prescribe me more of the Domperidone and another anti-emetic drug, Cyclizine, which often proved helpful in particularly recalcitrant cases of severe and continuing nausea. He then suggested, gently, that an anti-anxiety drug might also be helpful at this point, which was music to my ears. Something along the lines of a horse tranquilliser might be good, I said, but he decided to give me Lorazepam. Stan promised that the drugs would be available for collection from the hospital pharmacy by mid-afternoon.
 
AND THEY WERE.
 
As I’ve said before, Stan’s the Man.
 
I should add that he apologised profusely for the problem with the Chemo 24 hr. Emergency Help Line, which was apparently unprecedented - the hospital has been having computer problems, and it was being fixed today. My GP, when I finally spoke to him, also apologised for his receptionist and assured me that I can ALWAYS speak to him or another doctor the same day if I have any further problems. And he has put ALL the anti-emetic drugs on to my repeat prescription list, so I can get them immediately when needed. This makes me feel much, much more secure, given that there are 5 cycles of chemo to go, and if there is one thing that is certain, in addition to death and taxes, it is that the side effects of the chemo will get worse as it continues.

The Cyclizine is helping enormously: the nausea hasn’t gone away, and I think it may well stay with me for the entire 100 Days of Chemo, but the new drug has somehow made it bearable, which before it wasn’t. It’s very hard to describe – the nausea is still sitting in my stomach, I can feel it, I’m still queasy ALL the time, but it’s not so sharp. I am going to be able to live with it, which is just as well, because I have no choice but so to do. 

In the evening, after R had brought me the drugs, and I had been very effectively sedated by the Lorazepam (which brings an entirely new meaning to the expression ‘Chemical Cosh’), I googled Cyclizine to see if there was anything I should know about this new drug. 

And Wikipedia told me that Cyclizine was the anti-emetic drug chosen by NASA as the space emetic for the astronauts who made the first landing on the moon. 

‘There you go, then’ said R, looking up from his Killer Sudoku, ‘If it’s good enough for Neil Armstrong, then it’s good enough for you’.