Showing posts with label MamaFo. Show all posts
Showing posts with label MamaFo. Show all posts

Saturday, February 23, 2013

MamaFo throws a spanner in the works


Day 76 Intermezzo: Another romantic interlude

General status update

Hair: slumbering, safely wrapped in snood

Nausea demon: hanging on in there – I find it quite astonishing that I still feel nauseous, despite being on four different anti-emetic drugs. I seem to have inherited the stomach of a feeble Victorian invalid, perhaps Elizabeth Barrett Browning. She was very fond of sofas too, come to think of it.

Chemo Muse: Fuelled by the steroids, she positively GLOWS. Keeping me at it.

Chemo Brian: tucked up on the sofa under a warm throw, with Chemo Rat Brian’s little head poking out out next to him. They are now inseparable.
.
Fatigue/weakness: that won’t kick in until about day 5. They made me go back to the hospital yesterday for an injection of something called Pegfilgrastim, which will encourage my bone marrow to produce more white blood cells, in the hope of avoiding another infection, and neutropenia, this chemo cycle. Worryingly, according to the notes that accompany the drug ‘Pegfilgrastim is a protein produced by biotechnology in bacteria called E.coli’ E.coli?? I guess I just have to trust my oncologist. Oh – have just noticed that included amongst the very common side effects of this drug, apart from joint pain (which I don’t have, so far) is …nausea. No wonder the Nausea Demon has been smirking to himself, he’s got some added back-up.

Anxiety level (1-10): It’s only day 3 of this chemo cycle, and I’m still on the steroids. The truly bad times don’t start until day 5.

State of mind: A bit down-hearted after another rather extreme experience at the hospital on Thursday. Still, taking comfort in the fact that there are only 2 more FECs to go.


Previously on Chemo Nights: After ‘meeting’ in cyberspace during a discussion about procrastination  with a mutual friend on Twitter, R and I have developed a close on-line relationship during the autumn of 2010, bonding over bonding over our mutual love of the London Review of Books , amongst other things. Our brains just match each other, and we quite like each other's photos, too. There are many obstacles that stand between us in terms of our personal circumstances, not least that I live in an old camel barn, converted into a library, on the north Aegean coast of Turkey, and he lives 2,000 miles away in West London. R is very keen for us to meet in person, and his approach to the obstacles in our way is much that of an Olympic 400m hurdler on the starting blocks, impatient for the gun to be fired so he can go for gold. I am considerably more cautious, having read much about  the low success rate of converting on-line relationships into real life ones. Eventually, however, I am persuaded that we should at least give it a try, and book a plane ticket back to London during the last week of March, 2011.

Now read on…..

My mother, MamaFo, who is 81 and lives in a fortified redoubt in the foothills of the Tramuntana  Mountains in Mallorca, where over the last 30 years she has cultivated a spectacularly beautiful Mediterranean garden (including a small but fruitful wacky baccy plantation  - for her personal use only, obvs - which is planted and harvested strictly according to the waxing and waning of the moon), gave up travelling a couple of years ago, on the following grounds:

1) She objects very strongly to the neo-fascist security staff at Heathrow airport who, last time she flew, managed to give her serious grief even though she was in a wheel-chair (Old lady in wheelchair! Obviously smuggling explosives! Needs to be body–searched!);

2) She objects very strongly to not being allowed to smoke between the time of entering the terminal at Palma airport and exiting the terminal at Heathrow, a gap of at least 5 hours between cigarettes, which is liable to lead to spontaneous combustion; and

3) She has done enough travelling for one life time – now is the time for her to sit on her terrace with a cup of coffee, a glass of Soberano, and a packet of Benson and Hedges, gazing at the ever-changing play of light on the Tramuntana mountains, watching the eagles swooping and gliding on the air-currents,  and occasionally barking instructions to my stepfather (somewhat younger than her – this is the way of my people) as he labours in the gardens on the terraced hillside below.

Nowadays, then, if we wish to see MamaFo, we have to get on a plane and go to Mallorca. This being the current state of affairs, I assumed, inasmuch as I thought about it at all, that my mother, whose 80th  birthday was coming up on April 4th, 2011, wouldn’t be holding a party; she had celebrated her 70th in the UK with some style, but repeating such an event was now out of the question.

Remember the aged uncle in the Forsyte Saga (I think it might have been James) whose mantra was ‘nobody ever tells me anything?’ That’s my role in the Fo family. It was sometime in February, and plans were already well underway for Mama Fo’s 80th Birthday Weekend Extravaganza in Mallorca, before anyone bothered to inform me that my presence was going to be required in the Tramuntana Mountains in the same week that I was planning to meet R for the first time in London.

I simply couldn’t believe it.

I had booked to come to London for 3 weeks, arriving on Sunday 27th of March, and MamaFo’s birthday weekend was beginning the following Friday. A plane ticket had been booked for me, and I was to present myself at Gatwick Airport on the Friday morning to travel with various family members to Mallorca for 4 days, returning the following Monday. There was to be a gala lunch on the Saturday at the Tramuntana Mountains Golf Club, whose greens are grazed by a small herd of goats, followed by a smaller lunch, for family only, at a restaurant down by the sea on the Sunday (MamaFo prefers to lunch rather than dine, these days). We were all to be accommodated in a historic finca, now converted to boutique agroturismo, just down the hill from Casa Fo.

It was to be a grand gathering of the clan, a celebration of the extended family, and of 80 years of MamaFo adding to the world’s rich tapestry in her own inimitable way.  Everyone was thrilled and excited about it.

Everyone except for me, that is..

I was already a complete basket case about going to meet R, and the only person who knew what I was planning was my closest friend in Ayvalik. No one in my family had any idea that my first trip to London in several years was about anything other than catching up with family and friends and stocking up on marmalade.  Now I was going to have to fly 2,000 miles to London, stay for 4 days, and then fly 1,000 miles back to Mallorca for the party.  The entire family was in a frenzy of excitement about this event, and I just couldn’t believe my bad luck, especially as I was expected to write a speech for the occasion, being the family orator.

This is a Message from God, I thought darkly, telling me that meeting R is going to be  a complete fiasco.  As the days counted down towards March 27th, and my head became more and more frazzled trying to think about two things at once, and people started commenting on my curious lack of enthusiasm for the coming festivities chez MamaFo, my mood began to darken about my secret assignation with R … should I just call the whole thing off?


Wednesday, January 2, 2013

Chemo Brian arrives, and the Primani Snood is introduced

Day 24

General status update

Hair: Now in protective custody for 48 hours – see below.

Nausea demon:  Struggling in vain to escape from his straightjacket, wherein he has been imprisoned by the Good Drugs. We can expect him to escape and start getting really arsy again around Day 3.

Chemo Muse: getting very annoyed with Chemo Brian; she is ITCHING to kick him into shape, with the help of the lovely speedy Dexy steroids, but realises she is going to have to wait for the other-drug-related fuzziness to wear off tomorrow.

Paranoia Demon: on hold because of the Good Drugs.

Chemo Brian: A long-feared arrival, he finally stumbled into Gurkha Towers today, dazed and confused, made himself at home, and started scrambling my brain – the Fo mental sharpness seems more than a little blunted. Hence the name, which appeared quite unintentionally on Twitter. I decided to keep him under that moniker, especially as @fionalaird immediately promised to send me a furry rodent of that name (Soft toy, NOT deceased. Or decomposing. Or in flames).  [MamaFo - pithy Yorkshire sayings, no 73, just one of many echoing down the decades: ‘you’re so sharp you’ll cut yourself, young lady, if you’re not careful’ - will probably be delighted.] About the reduced sharpness, that is, not the Chemo Rat. Or mouse. Or hamster. Rodent, anyway – um, where was I, exactly? Something about rat brains? I tell you what, let’s just move on.

Mouth: Numb with fear. Not connected to Brian, apparently
Sleep, lack of: on hold because of the Good Drugs
Anxiety level (1-10): on hold because of the Good Drugs
State of mind: see Chemo Brian

 

 
Posed by a model. No dogs were harassed with snoods in the administration of Fec2; image borrowed from http://b3ta.com/features/dogs-in-snoods/ , and  thus the person who posted that BEARS FULL RESPONSIBILITY

 
Am home from FEC2, woozy and rambling, a little bit high, and full of general benevolence to the universe, and more particularly to those who sent me good wishes and positive vibes for today on this blog, email, Twitter and Facebook – you know who you all are, and I LOVE YOU VERY MUCH.

The chemo went fine; I withstood the assault of Cold Cap II for the second time with no problems except for the muffled screams during the first five minutes. Happily R was away fetching coffee at this particular juncture, and by the time he returned I was able to affect a breezy, "bullets just bounce off me, dawlin’"*  

Then the chemo nurse injected the anti-emetics (various), the steroids (hello, Dexys, the Chemo Muse and I are both SO happy to see you again!), and then, at last the headline act: the Three Horsemen of FEC, one by one, starting with the jewel-coloured Epirubicin,
 
 

followed in short order by the less immediately visually appealing Fluorouracil and Cyclophosphamide, then half an hour after the chemo had finished, off with the cold cap, snooded and home … 

Yes, you did not misread; I did indeed say snooded, and snooded is what I immediately became after the cold cap was removed, and snooded I will remain for 48 hours, until I am allowed to wash all the goo from my hair. My hair is recovering from the assault of Cold Cap II, in a – I would like to think – cunningly swathed purple Primani (© @kirstiehepburn) snood, held in place with a headband, and that is how it must stay for the next 48 hours. R has started calling me Fo of Arabia, and enquiring as to how my stint as a shepherd in the Nativity play went, which could soon get very old; my pre-emptive response to the continuation of that kind of nonsense was simply to mutter 'Remember the Lysistrata, sweetheart, and be very, very afraid'.

I’ve always thought that snoods must be good for something - apart from inspiring  the traditional pastime of Nic Kershaw-snood mockery back in the day -
 
 
 
Not posed by a model - I believe this image actually IS, or rather WAS, Nic Kershaw
 
 
 and now I’ve found out what that thing is: for imposing temporary protective custody on chemo-threatened hair, post-cold cap administration. Sorted.
 
 


Yeah, I know I 'm looking pretty rough - that would be the 2 doses of chemo.
 
Still, only 4 more to go now....

 
* Yes, it’s a film quote – do you know who said this to whom in which movie? Without using Google? Scout’s Honour?
 
And, as an added bonus, here's a quiz question I DON'T think you solve can using using Google. Which famous British actor does the dog in the snood pictured below resemble? A prize for the first correct answer , possibly a brand new Primani snood.
 
 
 
 
 
Canine-  and 80s rock star-snood picture research by Professor R.E. Ashcroft, to whom many thanks.
 

Thursday, December 13, 2012

I keep confusing Dexamethasone with Dexys Midnight Runners….


Day 4
 
General status update:
Hair – was allowed to wash it today. But strictly NO HAIRDRYER
Nausea – starting to kick in, but bearable
Anxiety level (1-10) – too tired to worry about anything
State of mind – fragile
 
..but I gather the side effects are pretty much the same.
 
Yesterday I turned into a fairly reasonable facsimile of a whirling dervish, thanks to the steroid high provided by Dexamethasone, which is prescribed for the first couple of days after each chemo dose to alleviate the nausea. FEC is notorious for nausea – one of the most vomit-inducing chemo regimens. But only for the first week of every cycle, apparently.
 
I had been expecting to spend my first post-chemo day lying on the sofa and weeping, with intermittent dashes to the bathroom to throw up. However, with the help of the various anti-emetic drugs and the steroids the nausea, although very much present, stayed in the background, and I worked hard most of the day writing and publishing a lengthy blog post; at 2am I was still at my computer, playing Mah Jong and listening to Radio 4 podcasts. Steroids give you lots of energy, but they really don’t want to let you go to sleep.
 
Today came the first post-steroid crash, of which I had been forewarned: I woke up, and remained, feeling weak, weepy and nauseous. But it will go. This is the worst day of the cycle, they say. And hence a shortish blog post, but I hope to do better tomorrow.
 
I have managed to get some food down, and go for an hour’s walk – regular exercise is important to help you tolerate the chemo better. I have, very cautiously, washed my hair (you can’t do this until at least 24 hours after the cold cap treatment), but am no longer allowed to use a hairdryer, so it has to look after itself from now on.
 
I am fully expecting to go bald in the end, but the cold cap should help to delay the process. When my mother heard that I was going to have to have chemo –
 
… ah, this is perhaps the time to introduce you to MamaFo, an important off-stage presence.
 
My mother is 81 years old, lives in the foothills of the Tramuntana Mountains in Mallorca, and is in generally excellent health, despite existing on a diet which consists principally of prawns, full-strength Benson & Hedges and dubious Spanish brandy. She swears her longevity, still-spectacular good looks and continued mental acuity are down to smoking a large, um, home-grown herbal cigarette, every evening just before bed time. She has been doing this for the last 30 years. You must realise that everything I say about my mother, however outlandish, is true: you simply COULD NOT MAKE IT UP.
 
And if you look at the photograph below, you will see that there is every reason to believe her claims - my mother could easily be mistaken for Joanna Lumley’s rather more glamorous elder sister:
 

 
Anyway, when my sister broke the news to her that I was, after all, going to have chemo, (which had not initially been thought necessary), MamaFo immediately asked
 
‘Does that mean all her hair will fall out?’
 
‘Yes, I’m afraid so. But it will grow back again later.’
 
There was a long silence as my mother inhaled deeply on her cigarette, and then blew out the smoke, emitting a thoughtful ‘Ah’.
 
Then, brightening, she added ‘Oh well, darling, Caroline’s hair has always been a complete catastrophe, so perhaps it will grow back a bit better next time.’