Day 70
General status update
Fatigue/weakness:
getting stronger every day. Tomorrow I will go to the hospital to have another
blood test, and see if my neutrophils have recovered enough for me to have
chemo this week.
Hair:
It needs cutting, but that is not going to happen until after chemo, if there’s
still enough left to cut.
Nausea demon:
Has sent us a postcard from the Lake District, where he seems to be enjoying
himself enormously yomping over the fells.
Chemo Muse:
Sat me down this morning, and got me to work again – I feel all the better for
it.
Despair Demon: kicked
him out again, with the help of the Chemo Muse – hard work is the antidote to
most spiritual ailments.
Chemo Brian: seems
unusually riled by Camille Paglia’s assertion in the Sunday Times today that
Rihanna is the new Diana; I tend to agree with R’s view that Camille Paglia is
best left back in the nineties, where she belongs.
.
Anxiety level
(1-10): my
only anxiety at the moment is anything standing between me and FEC 4 on
Thursday.
State of mind:
improving
News from the Tramuntana
Mountains: MamaFo rings, having lunched well (a few
butterflied prawns, followed by a little foie gras with apple; she invented the
high protein diet about 50 years ago, and remains a size 10) to say how much
the title of yesterday’s blog post had made her laugh. She also observes that
after 69 days of reading my blog she is now determined never to have chemo
herself, should the eventuality ever arise. She reminds me that she is nearly 82,
has been smoking for 60 years, and has yet to get cancer. ‘Hilarious, isn’t it,
darling?’ ‘Yes, Mother’ I reply ‘Yes, it really is’.
The Men’s Final of the US Open is pushed
back to Monday in 2012, because of inclement weather. I have a strong feeling
that this match is going to be the one when Andy Murray finally becomes a Grand
Slam Champion, something I have been waiting for ever since I first saw him
play as a lanky, stroppy teenager back in 2005. He needed time to finish
growing, become stronger, and sort out his head, but right from the beginning
it was evident he had not only the talent, but that inner core of steel needed
to become a Grand Slam Champion, and the US Open has always been his favourite
tournament, on his best surface, the one he is most likely to win.
So Monday September 10th is a big day for me, one
I’ve been waiting for a very long time; it is also the day on which we are
going back to Charing Cross Hospital to meet the surgeon who is going to
operate on my breast. Before today, this has all been very theoretical; now,
the wheels are beginning to turn, and I have to face up to what is going to
happen to me.
The appointment is for 9.10, which is good, as clinics tend
to run late as the day goes on; at the beginning of the day, we should get in
and out reasonably quickly, and then R can go to work. At 9.15 a doctor calls
us into an office, sits us down, and tells us that he’s very sorry, but Mr H,
the surgeon, won’t be there for another two hours. He doesn’t explain why. We don’t
have to stay and wait; we are free to leave, but should return at 11.15 am. We
thank him for letting us know, and walk outside into the sunshine, debating
what to do.
We decide to make use of the time by going to the Haven, the
Breast Cancer Support Centre which is quite close by, in Fulham, so that R can
see it for the first time. R hunkers down on a sofa and reads his book, while I
browse in the library, but we’re both too tense to concentrate. By 11am we are
back in the Breast Clinic waiting room, and 20 minutes later a man comes in
whom I recognise as Mr H – I’ve already googled him. Google has informed me
that Mr H is a highly experienced breast surgeon of about 50 who has worked in
the USA as well as the UK, has an MPhil as well as all his medical
qualifications, and a number of research publications to his name. He also has
a private practice in Harley Street, and is Head of Breast Surgery at this
hospital; on paper, at least, he sounds excellent.
After my bruising experience with Mr G, however, I am
approaching this meeting with extreme caution, and a great deal of anxiety. I
know surgeons need to be good at cutting people up, and putting them back
together again; interpersonal skills are not part of the job description. But I’m
damned if I’m going to let anyone else treat me with such blatant discourtesy.
I needn’t have worried – Mr H turns out to be as impressive
in person as he is on paper; he is courteous, kind, and doesn’t feel the need
to talk down to us. On the internet I found a list of questions that you should
ask your breast surgeon when you meet him for the first time; top of the list
is how many times he has done this kind of operation, but I can see that might
not do, here. Operating on breasts is what Mr H does, and has been doing for at
least 20 years, so we can skip the preliminaries. We ask about the cancer, and
how they decide on the course of treatment: he has endless patience with our
questions, which are many, and is crystal clear in his explanations. This is a man completely
on top of his game, who is also personable, and taking pains to put us at our
ease; he cannot be faulted.
My tumour is, they think, relatively small - about 1.4 cm. It is Stage II, which means that although it has invaded the breast tissue outside the duct in which it originated, it is still at an early stage, and its growth is relatively slow; it is not an aggressive cancer. They don't think it has yet spread to my lymph nodes, which are the first port of call after the breast when a cancer begins to spread. The operation Mr H will perform is a Wide Local Excision (WLE), commonly known as a lumpectomy. In the bad old days, a diagnosis of breast cancer automatically meant a mastectomy, however small the tumour, or early the stage; nowadays, though, they try to conserve the breast if at all possible. Mr H assures us that the cosmetic result in my case is likely to be very good, that the breast will not be notably different in size or shape, and that there will be little, if any, scarring.
My tumour is, they think, relatively small - about 1.4 cm. It is Stage II, which means that although it has invaded the breast tissue outside the duct in which it originated, it is still at an early stage, and its growth is relatively slow; it is not an aggressive cancer. They don't think it has yet spread to my lymph nodes, which are the first port of call after the breast when a cancer begins to spread. The operation Mr H will perform is a Wide Local Excision (WLE), commonly known as a lumpectomy. In the bad old days, a diagnosis of breast cancer automatically meant a mastectomy, however small the tumour, or early the stage; nowadays, though, they try to conserve the breast if at all possible. Mr H assures us that the cosmetic result in my case is likely to be very good, that the breast will not be notably different in size or shape, and that there will be little, if any, scarring.
He asks to examine my breast, as he needs to think about how
to approach the surgery. I disrobe, and point to the location of the lump, just
under the surface on the upper slope of my right breast. Mr H feels the lump
with great care, and gazes at my breast, deep in thought. At this point it
strikes me, very forcefully, that my life will literally be in this man’s hands:
he is going to take a scalpel and slice me open to remove the lump of deadly mutant
cells inside. My future is completely dependent on his skill. I’ve never had
any kind of surgery before, and this sudden realisation of what he is going to
do is shocking; my eyes fill with tears and I close them, so no one will see.
Mr H starts to talk about what he will do, his fingers moving
over my breast to show me. He is a sculptor, I realise, a sculptor of breasts,
and he talks like the craftsman he is.
‘What we’ll do’ he says ‘is make the incision around the areola,
the edge of the nipple here, in order
to minimise any scarring. Then, when we’ve taken out the tumour, we’ll move
some tissue from down here’ – he touches the lower curve of my breast below the
nipple – ‘up to fill the space, and then we’ll re-position the nipple higher up.’
Oh, Jesus Christ, he’s going to MOVE
my NIPPLE. Please God, no, please don’t let this be happening to me.
Mr H continues, smiling ‘So, really, we’ll just be giving you
a breast lift’.
What the F***? Did he just say a
BREAST LIFT???
I gaze at him stupidly. ‘A breast lift? You mean like in
cosmetic surgery?’
‘It’s not cosmetic surgery’ says Mr H, slightly terse, ‘It’s oncoplastic surgery.’
‘Yes, yes, of course’ I say, terrified of having offended him.
‘I do realise that. Sorry – I was just a bit surprised.’
He continues: ‘But yes, the overall effect will be the same
as a cosmetic breast lift. Afterwards, your nipple will be higher up on the
breast.’
I am still finding this difficult to compute.
‘So afterwards it will look different from my other breast?’
‘Oh, don’t worry about that’ says Mr H ‘I can do the other
one to match, later on.’
That afternoon, after R has gone to work, I google breast
lifts, and discover that women apparently in their right minds,
healthy women with healthy breasts, pay upwards of £5,000 to have this kind of
surgery. It floors me. I read about the risks of the surgery, and the pain it
involves, and how long it takes to recover, and I think ‘Healthy women PAY to
have this done to themselves? REALLY?’
My immediate public reaction is to start writing cheery
emails about wonderful my surgeon is, and joking about how I’m going to end up
with the tits of a 22 year old, and how lucky is THAT?
Inside my head, though, I’m not doing too well.
In the late evening, it’s the tennis, and my chance to exult
as Andy Murray roars through a titanic five set struggle to become Britain’s
first male Grand Slam Champion for nearly a century. My heart isn’t in it,
though, and we go to bed, but I lie there in the dark unable to sleep, my head
full of what is going to happen on the operating table.
Eventually I give up and get out of bed, creeping out of the
room as quietly as possible so as not to wake R. In the sitting room I finally
stop trying to hold myself together, and sit watching the last set of the
tennis with tears streaming down my face, trying to cry quietly.
I end up on the floor, curled up in a foetal position on the
old Caucasian rug which is one of the few things I brought with me when I moved
in with R. Andy Murray wins, achieves his life-time dream and weeps with
joy, as R comes in and finds me on the floor, sobbing one sentence over and
over again: ‘I don’t want him to cut me up, I don’t want him to cut me up, I
don’t want him to cut me up.’
We both know, of course, that what I want is no longer of any importance whatsoever.
"So afterwards it will look different from my other breast?"
ReplyDelete"Oh, don’t worry about that" says Mr H "I can do the other one to match, later on."
I cannot remember when I've read something on the web that conjures up such an... um, unusual... mental picture in my head.
Hope you're feeling better today! Day 70 -- you're on the downhill side of this chemo hell!
Hi Caroline! I hope you have been doing well. I understand that the chemo and breast surgery all happening to you now and so fast just really gets to your head, and makes you feel fearful of a lot of things. But you do know that all these would help you extend your life and become healthy again, right? Just think positively of the great possibility of getting your normal life back very soon and remain strong. I know that’s easy to say because I am not in your situation, but I do hope it would help you feel even a bit better. And also, it seems like Mr. H does sound like a great person to trust your situation and hopes to, so just hold on a little longer okay?
ReplyDeleteShavonda Duarte