Day 110
General status update
Fatigue/weakness: I’m
so tired, I’m so so tired, I’m just totally, utterly FECked
Eyes: increasingly blurry, which means
the chemo must now be Right Inside My Eyeballs – nice.
Anxiety level/insane euphoria (+/- 1-10,000): very,
very anxious in case FEC 6 is delayed this week because of a low neutrophil
count, after the latest infection. If there’s anyone out there who does the
whole praying thing, then if you could put in a good word for me with Her Upstairs
with a view to a little spontaneous neutrophil upsurge by Wednesday, I would be
very grateful indeed.
Nausea demon:
away on his Easter retreat with the Benedictine monks at Worth Abbey in Sussex –
I sincerely hope he didn’t decide to take some E.coli with him as a surprise
gift.
Despair Demon: he’s
still moaning to me about his treatment at the hands of the Chemo Muse, who seems to have dropped
him and moved on without a backward glance, or even informing him, for that
matter. Given his status as the David Beckham figure of the infernal regions –
he’s even been featured in the advertising for the Calvin Klein Demonic Pants
Range clad only in his tattoos and a suspiciously well-stuffed pair of tighty
whities – he’s usually beating women off with sticks (I speak figuratively,
obvs) and he can’t quite compute that he’s been dumped. He keeps thinking up
daft reasons why she’s not responding to his texts. I give it another 2 days
max before I finally snap and spray ‘She’s just not that into you’ in 2 feet
high letters on the sitting-room wall.
Chemo Muse:
she completely wore me out yesterday, so she was in no position to complain
about me spending a large part of today on the sofa with Chemo Brian and his woolly rat familiar.
State of mind:
I’ll be having my LAST dose of chemo on Thursday, neutrophils allowing – can’t
quite get my head round that yet...
Hair:
it’s in such a terrible state that now it’s demanding to go back into the
snood, given my refusal to cut it until after the last dose of chemo, just in
case. I keep thinking I should be wearing a badge saying ‘Yes, I know my hair looks awful, but I’m not
allowed to touch it, and I SHOULD REALLY HAVE BEEN BALD BY NOW, OK?’ The only
mercy is that MamaFo is safely 1,000 miles away and will not be in a position
to launch one of her special critiques of my hair until well after the chemo is
all done.
I’m afraid writing yesterday’s mammoth blog-post, one of the
longest in the last 15 weeks of Chemo Nights, which took more than 6 hours,
also used up more energy than I actually had to spare – today the fatigue has
hit me again so hard that I’ve spent most of the day horizontal, and a
considerable proportion of that with my eyes closed. Chemo Brian has taken charge
of my brain, so we’re in a pleasantly fuzzy place with no mental acuity
expected, which is really just as well.
Hey, at least there’ll be more steroids on Thursday- although
it’s starting to worry me slightly just how much I’m looking forward to the
next delivery of Dexys…
I can’t manage any more than this today, so if you’re stuck
for something to read with your toast and marmalade, here’s a link to something
I wrote earlier on the Camel Barn Library blog about Ayvalik, the strange,
half-ruined Ottoman Greek town in the Turkish north Aegean that was my home
until recently, and whither I will be returning in early May for a couple of weeks
of post-chemo recuperation: My
City of Ruins.
It’s a hell of a long way from the Fulham Palace Road…
and it's always good to have another Springsteen video, no?
I read your "Eyes: increasingly blurry, which means the chemo must now be Right Inside My Eyeballs – nice" and thought, oh how well I remember that particular side effect...
ReplyDeleteIs hard to deal with all else when one cannot properly SEE all else!
Not that it's any help right now, but I can assure you this condition is temporary - if not fleeting.
You've come so far, Caroline, and you'll make it through. Hang on tight now and try not to count the moments, just allow time to drift out there beyond any deliberate consciousness. The last bit, for me, seemed to go at a snail's pace until I gave in, stopped looking at the clock, and became one with the sofa. The clock had gone all blurry anyway, and my brain was having trouble comprehending the concept of time.
And then I was 'there' - receiving my final treatment, steely-eyed and detached, my only reality being that I knew this was the end of this leg of the trip and Steroidville was my next stop.
For what it's worth at the moment, we're ALL pulling for you.
Love,
Jen