Day 126
General status update
FEC cycle 6, day 11
The Chemo Demons are all
still away in Paris – they’ll be back tomorrow. I hope they bring me some
macarons.
Fatigue/weakness: slight improvement
Left Arm:
still very painful – it’s almost as if it’s full of toxic chemicals - oh, wait…
Anxiety level/insane euphoria (+/- 1-10,000): Mais
où sont les Dexys d'antan?
State of mind:
slightly less batshit crazy than yesterday, which has to be good.
Another email from my friend Dor - à propos of yesterday’s firmly North Korean frame of mind - pointing
out that North Korea has just changed its TV news topic from war alerts to
preparations for festivals, which she hopes may also be a good omen for post-chemo
world here in Gurkha Towers.
And I think she may well be right.
Today has been a lot better both physically and mentally, so
I’m hoping that yesterday will prove to have been FEC’s last stand – or at
least the last time it will be capable of completely defeating me in both body
and mind. The nausea and stomach problems have abated, and today I at least
felt human. In another week’s time it will be close to the end of the chemo
cycle and the poison will really be leaving my body for the last time.
I had just got a bit ahead of myself with the euphoria of
walking out of the chemo ward for the last time 10 days ago, which was stupid.
If you’ve just been pumped full of toxic chemicals which will take at least 2
weeks to flush out of your system, then you are nowhere near the end – you are two to three weeks away from the
end. Lesson learnt.
I’ve also been somewhat taken aback by my fairly extreme
emotional reactions and mood swings in the ten days since the final dose of
chemo, and one of my Cyber Chemo Buddies mentioned to me something her doctor
had said about this: ‘the mind is a
strange thing, it puts up with so much stress, but it's when we get back to
'normal' that it retaliates’. That seems to sum it up quite well – after 16
weeks, now that the chemo is very nearly over and I no longer have to find a
way of holding myself together for the duration, my mind seems to be saying ‘OK,
that’s enough, give me a break now’ and letting me fall apart.
This has also been happening to others in my online group who
started chemo with me back in December, and with whom I have travelled down
this long and painful road, and it is very comforting to know that I am not
alone in losing it in various ways. We’re all just slightly batshit crazy right
now, to be quite honest; but at least we’re batshit crazy amongst friends.
A commenter on the blog yesterday tactfully suggested that
this might be a good time to take myself down to the Haven, and she’s
absolutely right: the Haven is exactly where I need to be right now. The
therapies they offer are specifically designed to soothe minds and bodies
ravaged by cancer treatment, and I am going to go there tomorrow morning and
book myself into whatever is available. I’ve also got 5 more hours of NHS complementary
therapies available, so it’s time to start taking advantage of that.
The surgery and the chemo have taken a very heavy physical
and mental toll, but they’re done, and now it’s time for me to start making use
of the resources available to heal both my body and my mind.
And I will get back in the swimming pool a week tomorrow, all being well.
Just 7 more days until I can get back in touch with my Inner Trout.
That's not very long at all.
*smiles* *nods head* *reads post again*
ReplyDelete*hopes you do take advantage of The Haven*
Phew!
*sends cyber hug*
xxx Jen
:) thanks, Jen xx
DeleteDear Caroline, once upon a Lounge you sent us delicious cakes. Jecca and I would be delighted to make you some macarons if you would like. We very much enjoy making them and I'm sure if packaged carefully they would arrive with you in pretty good shape. If you would like some message me on Facebook with some idea of flavours you would enjoy and we will get to work.
ReplyDeletelots of love,
C
PS Jecca has been reading Chemo Nights too and seems to have been getting a lot out of it.
PPS I recommend the salted caramel... bacon and maple syrup is pretty good too. Or chocolate. Or lemon. Or lime. Raspberry maybe?
That's so funny, I had almost forgotten about Cricket Cottage Cakes. I was totally obsessed with making Lemon Drizzle Friands and Mars Bar Brownies for a while...
DeleteAm deeply impressed that you can make macarons, they sound quite tricky. I would love some - thank you. I will message you on Facebook xx
Tomorrow The Haven will be mindful of you - let the Reiki make you relax and do ask them to be mindful of you arm, it's your "wing" - it's feathers, once so fine are torn and tattered - let your feathers heal too x
ReplyDelete